WORLD SLEEP DAY 2024

World Sleep Day, March 15, 2024, Sleep Equity for Global Health.

WORLD SLEEP DAY

‘Sleep Equity for Global Health’ is this year’s World Sleep Day theme.

As a World Sleep Day delegate this year, I will be sharing some slides that I have created, using the responses to my questions that I asked members of the Living With Narcolepsy in Australia Facebook Group.

We aim to raise awareness of the importance of sleep for physical and mental health, as well as the challenges faced by people who live with narcolepsy in Australia.

Please help us to raise awareness for World Sleep Day, March 15th, 2024.

World Nacolepsy Day

Just a quick post to let everyone know that today I am celebrating World Narcolepsy Day by sharing stories from people who are Living With Narcolepsy, to Raise Narcolepsy Awareness. If you would like to watch the videos please go to my Waking Up Tired Facebook page where you will also be able to shareContinue reading “World Nacolepsy Day”

Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication

Guest Speaker: Gina Dennis, CHCTopic: Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication. At this month’s Living With Narcolepsy Catch-Up I invited Madcap Gina, aka Gina Dennis from Madcap Narcolepsy to be our guest speaker. Gina discussed how to mitigate narcolepsy and idiopathic hypersomnia symptoms by using diet and lifestyle changes and techniques. Gina’s specialty isContinue reading “Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication”

LIVING WITH NARCOLEPSY IN AUSTRALIA

I have been very busy putting together slideshows to Raise Narcolepsy Awareness for this years World Narcolepsy Day. The slideshows are a brief snippet about what it is like to be Living With Narcolepsy in Australia. I invited people who Live With Narcolepsy to answer a few questions, and have put their responses into slideshowContinue reading “LIVING WITH NARCOLEPSY IN AUSTRALIA”

Sharing Our Stories To Raise Awareness

Being diagnosed at the age of 49 to me meant that I had already lost the majority of my life and therefore I was determined to find the best possible way to get through my remaining years as a person who is ‘Living with Narcolepsy’ the best way that I possibly can.

Central Disorders of Hypersomnolence (CDH) Consumer Forum.

I am proud to announce that I was recently invited by Michelle Chadwick from Hypersomnolence Australia to become a member of the CDH Consumer Forum. I now have the opportunity to connect with consumers and other consumer advocates, to collaborate on initiatives that will benefit others within the Australian Narcolepsy communities. Health consumers have beenContinue reading “Central Disorders of Hypersomnolence (CDH) Consumer Forum.”

The Underground Railroad

The Underground Railroad was released on World Narcolepsy Day, September 22, 2022 to help to raise narcolepsy awareness. My song is available to stream on all major streaming platforms including Spotify, YouTube, YouTube Music, Amazon Music, and Deezer and to purchase on bandcamp, iTunes, and Apple Music. To watch my lyric video for ‘The UndergroundContinue reading The Underground Railroad

Today is World Narcolepsy Day

The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinue reading “Today is World Narcolepsy Day”

World Narcolepsy Day 2021

World Narcolepsy Day is only 11 days away, on September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is theContinue reading “World Narcolepsy Day 2021”