The Underground Railroad

The Underground Railroad was released on World Narcolepsy Day to raise narcolepsy awareness, and is available to stream on Spotify, Amazon Music, and Deezer or purchase on bandcamp and Apple Music. https://dispillane.bandcamp.com/follow_me https://music.apple.com/au/album/the-underground-railroad-single/1642022382 For more than 25 years, Harriet Tubman was trapped in the bonds of slavery before escaping, traveling alone mostly under the coverContinue reading The Underground Railroad

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The Underground Railroad

Please help me to raise awareness on World Narcolepsy Day, September 22nd, by streaming this song on your preferred streaming service, and or purchase this single, request it to be played on the radio.

Today is World Narcolepsy Day

The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinue reading “Today is World Narcolepsy Day”

World Narcolepsy Day 2021

World Narcolepsy Day is only 11 days away, September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the mostContinue reading “World Narcolepsy Day 2021”

Hypnagogic Hallucinations

The festive season is now behind us and I am sure that I am not the only one glad to have seen 2020 come to an end. The pandemic has had a devastating impact globally, but it has also had some positive outcomes especially where receiving health care is concerned. The introduction of phone appointmentsContinue reading “Hypnagogic Hallucinations”

Fatigue and the Festive Season

The festive season is exhausting for people as it is, so imagine how difficult it is for someone who has undiagnosed and therefore un-treated narcolepsy, a full-time job and 4 children! I always hosted Christmas lunch and to be honest I found having the family over for Christmas was a lot easier than having toContinue reading “Fatigue and the Festive Season”

Don’t Give Up

It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but itContinue reading “Don’t Give Up”

Grief is Exhausting

Today marks the 13th year of the unexpected passing of my eldest child Daniel. Daniel was a perfectly healthy 16 year old teenage boy; there was no reason for me to suspect that the 10th of December 2007 would be the last time that I would see him alive. On this day 13 years agoContinue reading “Grief is Exhausting”

The Red Herring Story

As mentioned in a previous blog “The Arrival of the Red Herring”, I was given an appointment at the Lyell McEwin hospital to see a neurologist. The initial appointment was daunting as my head was still trying to process this potential MS diagnosis, and to be perfectly honest I was really scared. There are, asContinue reading “The Red Herring Story”

The Importance of Sleep

If you think that cutting back on sleep won’t affect you then think again. Fatigue played a considerable role during the 70s and 80s in some of the worst preventable disasters the world has ever seen. Investigations revealed that sleep deprivation was a significant factor in the 1979 nuclear accident at Three Mile Island, asContinue reading “The Importance of Sleep”