Please help me to raise awareness on World Narcolepsy Day, September 22nd, by streaming this song on your preferred streaming service, and or purchase this single, request it to be played on the radio.
Category Archives: fatigue
Today is World Narcolepsy Day
The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinue reading “Today is World Narcolepsy Day”
World Narcolepsy Day 2021
World Narcolepsy Day is only 11 days away, September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the mostContinue reading “World Narcolepsy Day 2021”
Hypnagogic Hallucinations
The festive season is now behind us and I am sure that I am not the only one glad to have seen 2020 come to an end. The pandemic has had a devastating impact globally, but it has also had some positive outcomes especially where receiving health care is concerned. The introduction of phone appointmentsContinue reading “Hypnagogic Hallucinations”
Fatigue and the Festive Season
The festive season is exhausting for people as it is, so imagine how difficult it is for someone who has undiagnosed and therefore un-treated narcolepsy, a full-time job and 4 children! I always hosted Christmas lunch and to be honest I found having the family over for Christmas was a lot easier than having toContinue reading “Fatigue and the Festive Season”
The Red Herring Story
As mentioned in a previous blog “The Arrival of the Red Herring”, I was given an appointment at the Lyell McEwin hospital to see a neurologist. The initial appointment was daunting as my head was still trying to process this potential MS diagnosis, and to be perfectly honest I was really scared. There are, asContinue reading “The Red Herring Story”
The Importance of Sleep
If you think that cutting back on sleep won’t affect you then think again. Fatigue played a considerable role during the 70s and 80s in some of the worst preventable disasters the world has ever seen. Investigations revealed that sleep deprivation was a significant factor in the 1979 nuclear accident at Three Mile Island, asContinue reading “The Importance of Sleep”
The Phone Battery Theory
How do you explain what it is like to have Narcolepsy? This is a regular topic of conversation within social media narcolepsy forums; and one that never really seems to be answered. The fact is that it is almost impossible for anyone who doesn’t have it to be able to understand the battle. I haveContinue reading “The Phone Battery Theory”
The Arrival of the Red Herring
During the ongoing fatigue investigation I was also seeing a psychiatrist as I had been diagnosed with depression in 1998 and the fatigue that I was experiencing was thought to be (by the specialists who my work had sent me to see) as a result of my depressed state. If you had lived with beingContinue reading “The Arrival of the Red Herring”
Increasingly Forgetful
When you have spent the majority of your life waking up tired you don’t know any different, in fact I honestly thought that everyone must wake up feeling the same way, boy was I ever wrong! I didn’t even begin to suspect that something wasn’t right until around 2012 when I began to have troubleContinue reading “Increasingly Forgetful”
WAKING UP TIRED 