Today is World Narcolepsy Day

The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinue reading “Today is World Narcolepsy Day”

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World Narcolepsy Day 2021

World Narcolepsy Day is only 11 days away, September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the mostContinue reading “World Narcolepsy Day 2021”

Don’t Give Up

It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but itContinue reading “Don’t Give Up”

Grief is Exhausting

Today marks the 13th year of the unexpected passing of my eldest child Daniel. Daniel was a perfectly healthy 16 year old teenage boy; there was no reason for me to suspect that the 10th of December 2007 would be the last time that I would see him alive. On this day 13 years agoContinue reading “Grief is Exhausting”