The Underground Railroad

The Underground Railroad was released on World Narcolepsy Day to raise narcolepsy awareness, and is available to stream on Spotify, Amazon Music, and Deezer or purchase on bandcamp and Apple Music. https://dispillane.bandcamp.com/follow_me https://music.apple.com/au/album/the-underground-railroad-single/1642022382 For more than 25 years, Harriet Tubman was trapped in the bonds of slavery before escaping, traveling alone mostly under the cover

Today is World Narcolepsy Day

The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosed

World Narcolepsy Day 2021

World Narcolepsy Day is only 11 days away, September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the most

Don’t Give Up

It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but it

The Arrival of the Red Herring

During the ongoing fatigue investigation I was also seeing a psychiatrist as I had been diagnosed with depression in 1998 and the fatigue that I was experiencing was thought to be (by the specialists who my work had sent me to see) as a result of my depressed state. If you had lived with being

Increasingly Forgetful

When you have spent the majority of your life waking up tired you don’t know any different, in fact I honestly thought that everyone must wake up feeling the same way, boy was I ever wrong! I didn’t even begin to suspect that something wasn’t right until around 2012 when I began to have trouble

Raising Awareness Interview

On the lead up to this years World Narcolepsy Day, I was invited to be interviewed to discuss narcolepsy by Jo from my local community radio station PBAFM. Jo has a weekly program called The Kitchen Table, and every week she and her co host Pete chat with a variety of people about subjects that

What I have done to help raise awareness

World Narcolepsy Day – Dreaming about a Bright Future is what I wrote on my project_sleep cloud. As you know, I started this blog in an effort to help raise awareness for World Narcolepsy Day. I have also written a song and hope to have this available on here for you all to listen to

Raising Awareness

<p id="RaisingAwareness" value="<amp-fit-text layout="fixed-height" min-font-size="6" max-font-size="72" height="80">Today I will be joining "<a href="https://www.pbafm.org.au/shows/the-kitchen-table/">The Kitchen Table</a>" at 1.30pm (SA time) to discuss narcolepsy to help to raise awareness of this chronic neurological condition. Tune in to <a href="https://radioau.net/pba-fm/">PBAFM</a&gt; 89.7 FM to hear the interview.Today I will be joining “The Kitchen Table” at 1.30pm (SA time) to

World Narcolepsy Day

September 22nd is the second World Narcolepsy Day. Last year Narcolepsy Australia organised “Meet Up’s” around the country, but unfortunately due to the C-19 Pandemic this will not be happening this year. The American non-profit organization Project Sleep co leads an awareness campaign with a series of online activities, story sharing events and training sessions