The Underground Railroad

The Underground Railroad was released on World Narcolepsy Day to raise narcolepsy awareness, and is available to stream on Spotify, Amazon Music, and Deezer or purchase on bandcamp and Apple Music. https://dispillane.bandcamp.com/follow_me https://music.apple.com/au/album/the-underground-railroad-single/1642022382 For more than 25 years, Harriet Tubman was trapped in the bonds of slavery before escaping, traveling alone mostly under the cover

The Underground Railroad

Please help me to raise awareness on World Narcolepsy Day, September 22nd, by streaming this song on your preferred streaming service, and or purchase this single, request it to be played on the radio.

Today is World Narcolepsy Day

The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosed

World Narcolepsy Day 2021

World Narcolepsy Day is only 11 days away, September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the most

Don’t Give Up

It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but it

The Red Herring Story

As mentioned in a previous blog “The Arrival of the Red Herring”, I was given an appointment at the Lyell McEwin hospital to see a neurologist. The initial appointment was daunting as my head was still trying to process this potential MS diagnosis, and to be perfectly honest I was really scared. There are, as

The Importance of Sleep

If you think that cutting back on sleep won’t affect you then think again. Fatigue played a considerable role during the 70s and 80s in some of the worst preventable disasters the world has ever seen. Investigations revealed that sleep deprivation was a significant factor in the 1979 nuclear accident at Three Mile Island, as

The Phone Battery Theory

How do you explain what it is like to have Narcolepsy? This is a regular topic of conversation within social media narcolepsy forums; and one that never really seems to be answered. The fact is that it is almost impossible for anyone who doesn’t have it to be able to understand the battle. I have

The Arrival of the Red Herring

During the ongoing fatigue investigation I was also seeing a psychiatrist as I had been diagnosed with depression in 1998 and the fatigue that I was experiencing was thought to be (by the specialists who my work had sent me to see) as a result of my depressed state. If you had lived with being

Increasingly Forgetful

When you have spent the majority of your life waking up tired you don’t know any different, in fact I honestly thought that everyone must wake up feeling the same way, boy was I ever wrong! I didn’t even begin to suspect that something wasn’t right until around 2012 when I began to have trouble